Showing posts with label Supportive Psychotherapy. Show all posts
Showing posts with label Supportive Psychotherapy. Show all posts

Friday, August 07, 2009

"It is the Relationship That Heals"






If this is your psychiatrist or therapist run...

I am always struck by how much support I get in my comments and how many thoughtful people comment. This was going to be a response to the comments in my last post, but it has turned into its own post instead...

I love to hear from people who comment on a regular basis. I feel like over the years I have developed relationships/friendships with many of these people. I also feel really good when I hear from those who rarely or never write. It feels like the beginning of a mutual support system. I am glad my writing reaches out to people. I hope it continues to do so. Your comments often inspire posts...like this one, so comment away.

I write this blog, not just for myself, but also for others trying to work through and battle the same or similar issues and demons. People sometimes comment about how open I am. My original intent for my blog was to try really hard to make this as close to therapy as possible. I wanted to push myself to be open and as completely honest as I thought I needed to be for therapy to work for me.

I also planned to use it to prepare for my therapy sessions, to debrief after my sessions, and to push myself to become brave enough to talk about deeply personal, and often scary thoughts I have. In writing I hoped I am able to show others that therapy is a rewarding, and helpful process, even if it is sometimes really, really hard to fully participate in.

I was hoping that if others could be "insiders" in another person's therapy sessions, if they could see my process, my difficulties, my struggles, my successes, my cycling, my wingbat thoughts and ideas, my creativity, my attempts to get better, and even my failures: I was hoping others might take a chance with their therapist; try hard to open up in therapy, to go to therapy if they never have, to address there darkest secrets, to address any patient/therapist disconnects in therapy, and to find the therapist or psychiatrist that truly fits their needs.

Before I met Dr. X. I had already been to therapy numerous other times each with varying degrees of success, and sadly often failure. With most of the therapists I saw there was either a complete disconnect between myself and them, or if it worked I was in need of a longer course of therapy, and I believe medication which no therapist ever mentioned was available.

I now believe I needed to somehow muster up enough energy to be more of an advocate for myself...Though I know, when severely depressed that may not be possible. If I were to have a second chance to be start at 19 again, if I needed to see a new psychiatrist/therapist, I would approach it as a customer trying to find the best "product"/"service"/treatment for me.

I would be more assertive, have greater expectations, ask more questions and not settle for the first person who comes along. I would have looked for someone like Dr. X from the start. Of course, that is easier said than done.

Below are some of the things I would look for in a psychiatrist/therapist if I had to look again:

  1. When meeting a new psychiatrist or therapist, make a list of the types of behaviours that are important to you in someone you are seeking help from.
  2. Be open to new ideas and approaches.
  3. Ask them questions.
  4. Listen to how they answer your questions. Are they welcoming? Do they sound put off by your questions? Are they caring?, or pushy?, or short?
  5. Do they have time for you?
  6. Are they just medication oriented?
  7. or Do they provide therapy? (I find it really helpful to have a psychiatrist who does both).
  8. Do they LISTEN?
  9. What are there credentials?
  10. What kind of experience do they have treating people like you?
  11. What type of therapy do they practice? I find the less dogmatic about a particular therapy style the better....Use whatever works!
  12. How flexible are they?
  13. Do you feel comfortable around them?
  14. The last sentence...Do you feel comfortable around them? ...is tricky, because many many times, probably during each of my sessions, there is some degree of feeling uncomfortable around Dr. X. Even 8 years into therapy I feel guilty, or ashamed, or afraid, or even angry at him periodically. The test of being comfortable lays in whether I can talk about my uncomfortableness...even if it takes a few sessions.

    If I feel he has said or done something I am uncomfortable with, and I can safely work through and see this as an opportunity to discover something about myself and others...then it is indeed a powerful and psychically "comfortable" relationship.

    The question I try to ask myself when this happens is whether these feelings are coming from me and my mood or experiences, or whether the psychiatrist or therapist is doing or saying something, that promotes my feeling ashamed, afraid, intimidated etc

    I "understand" (in my rational mind) Dr X. is NEVER judgemental, or angry, or pushy, or authoritative, or any other way that might increase or promote my feeling bad in therapy. That does not mean I do not ever feel these things. Who I am, what I have experienced etc. impact my reactions towards all my relationships' experiences and interactions

    Some Psychiatrists/Therapists (like some people of every persuasion or occupation) are pushy, or arrogant, or sure whatever they say is right, and the patient knows nothing about helping themselves. They tell the patient to just do whatever they tell them to do etc. This is the kind of therapy/doctor, that I always found did not work for me. For me a good therapist and/or psychiatrist forms a partnership with their patient, values their patients ideas and lets the patient know they are valued

    Some of my readers have expressed difficulties, or difficult relationships with, with their psychiatrists and/or therapists. I believe it is important to delving into into why I might feel that way. What kinds of behaviours, exchanges, actions, thoughts are taking place both in and out of therapy that are leading to your feeling a disconnect?

    In his book, "Love's Executioner" and in his novels and psychotherapy textbooks, Psychiatrist Irvin Yalom writes and expands upon the idea that, "it is the relationship [between patient & psychiatrist or therapist] that heals". My experiences in therapy with Dr. X have reinforced and proven this to be the case for me.

    I try to remember therapy is sometimes difficult. During some phases it can see impossible a lot of the time. As people with depression, or other mental illnesses, (really as people even with no mental illness)... as people period, we may have difficulties with some relationships in the first place; maybe that is even why we are in therapy.

    If I find something happening in my sessions that disturbs or perturbs me I always ask myself is the difficulty in therapy the therapist, or have I not opened up and taken the chances I need to take in therapy.

    • Is it my issue clouding the session,
    • Are my symptoms such that they are affecting my judgement (not always easy to know)
    • or is the therapist doing something hurtful that negatively impacts my ability to open up?
    • Is my therapist a good therapist?
    • Did they just make a mistake,
    • or is their attitude always this way?
    • Is it my approach to therapy?
    • or is it the therapists approach that is making it not work?

    The most important thing I can do as a patient is talk to my psychiatrist or therapist if I am feeling uncomfortable, or hurt, or diminished or disconnected in any way. I may not have the courage to bring it up while it is happening, or even during the next session, but if something about my therapy is festering inside me...I always bring it up.

    Everytime I have brought difficulties up he is completely open to discussing what went on. He apologizes if a mistake was made on his part, or we discuss my reaction if we discover my perception might be coloured by other things. He accepts and encourages my feedback no matter what. This is part of what makes our relationship so important and the bond so strong.

    I guess what I am trying to say here is that the first therapist you see, even the fifth and sixth therapist you see, may not be right for you . Don't give up because your therapy does not seem to be working for you.

    Therapy, and good relationships in therapy, is/are hard work. If the relationship between you and your psychiatrist or therapist does not seem to have a positive impact on you maybe try approaching your therapy a different way, or try a different kind of therapy, tell your therapist how you feel. If it still is not working perhaps trying a different therapist or psychiatrist would be the positive change you need.

    Tuesday, August 04, 2009

    Concrete and Practical Help

    The idea for this post came from Eliza Jane's comments about sometimes needing "concrete" help...thanks EJ

    On Sunday I left a message at my pdoc's office to see if I could get an appointment before my scheduled appointment. They called me this morning and booked me in for 4pm. Even as I spoke to the secretary I thought maybe I don't need the appointment now. I was still depressed, but not as acutely so as the past few days. I went against my avoidant self and took the appointment.

    A few "concrete" things helped me in my appointment today:
    • Dr. X's welcoming attitude when I expressed how I was happy to be able to see him earlier in the week. He said he was glad that I felt comfortable enough to call when I needed to.
    • Both his offer to write, and his taking time after my appointment to write, a letter for me to take to the emergency room if I ever felt I needed to go to the emergency because I was suicidal

    This letter was brought up after I explained to him how I was afraid to go to the hospital because I felt like I might get there and my mood might lift momentarily, then the Dr. would dismiss my symptoms, reject my cry for help and send me home, where I would feel even more depressed that no one "heard" me, recognized how depressed I was and that I needed help.

    In the letter he wrote about my mood disorder symptoms and the intensity and severity of my suicidal ideation. He also said that I would not bring myself to the hospital if I was not ready to put my suicide plans into action.

    • As I read the letter it became really clear to me that he really did understand how much I was hurting; how much pain my symptoms were causing me.

    I feel now, that if I were to be suicidal I would take myself, with the letter, to the hospital.

    • We discussed possible medication strategies...this gave me some hope that there are options we have not explored and many combos we have not tried.

    Thanks Dr. X for listening and helping me take care of myself. It really helped me to see you today.

    Thanks too to my friend "E" who encouraged me to see him in the first place.

    Thursday, July 16, 2009

    All and Nothing

    Today was one of those therapy sessions that was all over the map, covering everything and nothing at the same time:
    • How much I am drinking,
    • Why I am drinking more,
    • My mood is lifting
    • My mood is down
    • I am detached
    • I am tired all the time
    • I am having trouble doing things
    • My attempts to catch at reverse my feelings of being watched and judged,
    • My feelings of paranoia about my landlord
    • My inability to successfully stop my paranoid thoughts
    • My extreme worry (read major anxiety attacks) about my application for separation and divorce from my husband; my husband wants a detailed ironclad agreement between us, meaning I have to provide statements, tax info, asset info ( the list is 3 pages long)...This kind of scrutiny and information gathering is intensely disturbing and difficult for me to manage,
    • That I had unprotected (no birth control) sex twice this week despite having had a birth control failure the week before last and knowing exactly how stressed out I get about the chances of getting pregnant,
    • Why I had unprotected sex despite having had...blah, blah, blah,
    • How I am making poor judgements
    • How only the birth control write off an example of poor judgement
    • I had two dreams,
    • What I thought the dreams meant,

    And then finally..about 7 minutes before I have to leave Dr. X's office, what is really bothering me comes up: Am I going to be able to work again?

    Shoot me now, but I cannot manage my life with the uncertainty of not knowing what I am or am not going to be capable of . On one level I recognize Dr. X is not a "mind reader" ha, ha...but on another level I want to know, at the very least, the odds of my being employable again.

    What got me thinking about this again is my boyfriend. He has a M.I. too and has been chronically ill since he was very young. I asked him if he ever thought he would ever be well enough to be off disability. He just, matter of factly said , '"No".

    I then asked him if it bothered him and he said, "No", I have accepted that I can only do what I can. I work when I can and don't when I can't.

    In many ways I see how his knowledge of the incapacitating nature of his illness protects him from the type of feverish get back to work type schemes I come up with...like volunteering even if I am really sick, and being unable to say no to teaching, panicing about not working/not being able tpo work etc.

    On the other hand I worry that if I were like that it would be a kind of complacency that would make me give up life all together. What am I if I am not a worker? My whole life (until I got so sick) I was a worker.

    Dr. X enthusiastically explained (once again) that I am working...but he knows, and I know it is not the way I mean. I mean getting off disability contributing to the social well being of our country and fending for myself.

    He says I am contributing to the country and community. He says all the people I teach art to are benefiting from my volunteer work. He says if he was working for the insurance company he would be proud to see someone the company is helping, do as much for the community as I was.

    I just sat there protesting and bawling. I feel so much like I have failed; like I am a failure. Like I will never get better, never get well enough. I left his office sobbing and went into the washroom and cried. I just want to know what to expect for my future.

    Friday, May 29, 2009

    Pain and Tears

    I seem to have a never ending supply of tears. Why is that? It becomes especially apparent in my therapy sessions with Dr. K (or any other "therapy" sessions, formal, or informal),even if someone asks me how I am and actually wants me to tell the truth; and not say some lie like "fine.

    Some people have told me they cannot go to therapy because it is too painful, or because all they ever do is cry. In some ways I look forward to therapy for these reasons.

    If I don't go to therapy all my pain stays inside me and eats away at me and makes my symptoms worse. There is something comforting about knowing you can share your otherwise carefully hidden pain with someone else. It feels intensely powerful to be able to get all that pain out into the open, to toss the words that represent so much sorrow and anger and anxiety, out into the open room. To be able to share your feelings of strangeness, loneliness; "otherness" with another human being. To take a leap of trust and share anything you need to with another human being is cathartic and soul enhancing.

    I sometimes think I should stop therapy. I often sit down in the chair across from Dr. X and think I have nothing to say, nothing to contribute. I sometimes feel I repeat my stories, my pain, my sadness, my struggles...over and over and over. Sometimes I sit in painful silence not knowing what to0 say, or not having the energy to say anything. Dr. X says that's okay. It is okay to sit silently in the room with him.

    It seems counter intuitive. Therapy is for talking isn't it? For me there is also some kind of magical nature embedded in therapy with Dr. X. It never happened to me in therapy with anyone else. I sit across from my pdoc and often the anger, rage, anxiety and sadness quiets, dissipates, disappears. His demeanor, his patience, his attention, his acceptance and compassion seem to melt away some of my symptoms. I feel a sense of relief I rarely feel in the outside world.

    I think my tears flow so freely in therapy, because I feel it is okay to let go, to cry, to not hide how I feel. I believe they also flow from feelings of inadequacy, guilt and shame that I need to address in therapy. I feel small and unworthy in front of people in authority. I cannot cry and let out those feelings in front of most authority figures. I can in front of Dr. X. He has worked hard to help me see us as equals, to help me learn not all men, not all authority figures, not all people in positions of power want to take me down, punish me, or hurt me.

    I cannot believe how ingrained and generalized to almost the entire population (on some level I can see "authoritativeness" in everyone I know...everyone is better than me because I feel like such a loser for being how I am). So I cry because in situation when I am in front of other authority figures I feel scared, unworthy and afraid of punishment...I think I still unconsciously feel this way in front of Dr. X. I am so scared he will leave me, get sick of me, or think there is no point in continuing, or he will become unwell and leave.

    I am so scared I will be abandoned because I am not a worthy person. This dynamic reflects my fears about others leaving me. The tears flow and flow and flow because I constantly feel afraid of rejection. My tears are defensive.

    When I was little and growing up, I think I subconsciously learned that tears made my Dad stop belittling me. It stopped his teasing and torment of me. It stopped him hitting me. It decreased the pain in my life. I think my brain still makes me cry to protect me. I believe also I cry to release all the pain I experience or have experienced. Crying is a physical release for my mental pain. It feels so good to cry. It calms me.

    So I hurt and I cry in therapy, but for me those are two huge reasons to keep going. I need to release all that sadness and pain. I need to share these with someone I trust and believe in. I need to know I am not alone in my struggles. I need to know that there is at least one person in this world who will support me and help me and care for me no matter what I am feeling. Maybe I will never be completely "well", but the support helps me continue to try.

    Thursday, March 05, 2009

    Thank You

    Dear Dr. X,

    Thank you. I felt completely understood and immensely cared for in my session today. I really needed to experience belonging and connection. You really helped me feel less alone than I was /am feeling.

    At one point when I was telling you about something intensely personal and highly embarrassing for me to admit out loud I saw your face change to sudden sadness....not about what I was talking about, but at my expression of fear that you might judge me, or feel I was a bad person for things I have done.

    At that moment I knew you would never be judgemental of anything I have done, or might do; that I need not fear speaking any of my truths, past or present. The encouragement you gave me was incredible.

    When I felt like an outsider you helped me recognize that often it is the outsiders who are talented and interesting beings. You encouraged me to embrace my "outsiderness" rather than try to fit in. You helped me become aware that often my being an outsider is a gift, a talent, it is (ironically) what draws others to me. That was a great lesson. You are a great mentor for me.

    Thanks,
    ...aqua

    Monday, March 02, 2009

    At What Point is There No Hope Left?

    I volunteered to teach a class today. I was dreading teaching the whole time beforehand, even as I drove to the studio. While I was teaching I felt some relief; I was too distracted by the complexities of the lesson to think about how much I wanted to die. The second I touched the door to leave I was exhausted and fell once again into myself and all the hell that brings with it.

    When I look objectively at what I have tried to do to to help myself make the depression go away it frightens me. It scares me that I have tried so much, and so many things, and still nothing is consistently helping my depression dissipate. My mood still continues to cycle, I still feel angry and frustrated and depressed, anxious and panicky, and can't sleep, or sleep too much, eat too much, avoid everything, have difficulty leaving the house, doing things, cleaning, cooking, laundry, dishes, sex, lose interest in everything, lose hope...All this never goes away for any length of time. When it does it feels like temptation threatening to drown me as soon as I begin enjoying myself. I feel like Satan sits and waits for a good mood to begin inside me...and then BLAMO! he whacks me upside the head just to show me I am still lost to hell. Paradise; a life of enjoyment and happiness, is lost.

    It gets to the point where I begin to ask: Is it worth it? Am I worth it? There is a lot of money, medication, time and effort, both on my part, and the part of others, going into helping me become well. If, as I suspect, I will always cycle in and out of depression: What is the point of all this trying? From a utilitarian perspective it makes no sense at all to keep me here.

    Why take medications? Why continue in therapy? Why continue living? If life is going to be as hard as it has been these last 7.5 years and the two years, with a two month reprieve before that...and the too numerous to remember episodes of depression before that, if life is going to be this hard a struggle forever...why keep trying? At some point don't you just give up and say it will never get better. Live with it, accept it, give in, or die. Dr. X said let him carry my hope, but at what point is that futile? At what point to we both concede to having been beaten by this illness? If you review all I have tried you will think the same thing:

    1. 19: Journals filled with writing

    2. 304: Number of blog entries

    3. 425: Psychotherapy sessions with Dr. X. (give or take a few)

    4. 21250: Minutes of therapy with Dr X

    5. 14.75: years in my life lost to depression (conservative estimate)

    6. 6.2: Number of years spent unemployed because of my depression

    7. 104: Number of days on top of the 6.2 years lost employment because I could only manage working 4 days/week

    8. 29: Number of years underemployed because of my depression

    9. More than 8640: Number of pills bought to try to treat my depression if prescriptions were all one pill per day (many weren't/aren't)

    10. 288: Number of bottles of pills purchased

    11. Hundreds: of Visits to the pharmacy

    12. 33: Number of psychotropic medications tried**

    13. 9: Number of different vitamin/supplements tried

    14. 8: Number of ECT sessions received

    15. 177: Approximate number of months I have spent depressed in my lifetime

    16. 5384: Approximate number of days spent depressed

    17. 40: Number of years spent anxious and wanting to hide

    18. 36: Number of years I remember having difficulty sleeping

    19. 6: Number of therapists I have seen

    20. 3: Number of psychiatrists I have seen

    21. 2: Number of psychiatrists/ therapists I connected with

    22. 1. Number of Psychiatrists, Doctors, Health Care Workers I trust.

    Supplements/Vitamins I have tried/++Supplements/Vitamins I am currently taking:

    1. St. John's Wort

    2. Valerian

    3. Salmon Oil (took 6 grams/day)

    4. L-Tryptophan 2grams/day

    5. Iron supplement twice daily++

    6. B100 Complex (B1 100mg) ++

    7. B12

    8. Folic acid 1.0 mg

    9. 100mgs of each B vitamins++

    10. Multivitamin++

    SSRI's

    1. Prozac 60 mgs
    2. Paxil
    3. Celexa
    4. Effexor
    5. Luvox
    6. Zoloft
    Novel Anti-depressants:
    7. Wellbutrin.
    8. Remeron
    9. Moclobemide

    Tricyclic Antidepressants:
    10. Nortriptyline
    11. Amtrytiline (took for trauma symptoms...for 5 days after a traumatic incident)
    12. Desiprimine

    Anticonvulsants/Mood Stabilizers:
    13. Lamotrigine 200mg
    14. Lithium
    15. Epival
    16. Gabapentin
    17. Lithium (800-1200mg)
    18. Carbamazepine (800-1000mg)

    Benzodiazepines:
    19. Clonazepam
    20. Diazepam
    21. Lorazepam
    22. Temazepam

    Beta blocker:
    23. Propranolol

    Other:
    24. Low dose Doxepine
    25. Clonidine

    Atypical Antipsychotics:
    26. Seroquel
    27. Risperdal
    28. Olanzapine

    Hypnotics/Sleep Medication

    29. Trazadone (25/50mg/100mg/200mg/300mg)
    30. Zopiclone (7.5mg/15mg)

    Stimulants:

    31. Ritalin
    32. Dexedrine (tablets and spansules 5-20mgs)
    33. Modafinil

    Note:
    Also tried numerous combinations of above medications

    Am I doing something wrong? Am I making things not work? If so What? and Why? Does this happen to other people? Am I the only one who never gets better? Why? I used to want so badly to live a beautiful life. Now I have no desire to live.

    Friday, February 27, 2009

    Something is Wrong With This Picture

    When I was talking at the family support group last night and I came to the part about the psychiatrist needing to fill out a portion of the tax credit form one of the family members participating in the meeting said: "How is my son's psychiatrist going to fill this section out. They barely know him. They have hardly met with him".

    I had a few thoughts in that moment:

    1. Something is wrong with this picture. Given how ill it sounded like her son was it does not seem right that the psychiatrists have not met much with him. He isn't even at the point where he has the insight that he has a mental illness. When I mentioned I was in therapy with my pdoc, and that it was a very important (I think the MOST important), aspect of my treatment...the lady looked incredulously at me and could not believe my pdoc participated in therapy with me.
    2. I felt guilty. Guilty that her son was so ill and needed help and here I was 7.5 years into therapy, once, and for extended periods twice, a week. I am taking up important resources that others need too. Maybe I need to leave therapy so others can receive the help and support they need to get better.
    3. I really think therapy needs to be a part of the healing process. People need human support, they need professional psychiatric support, not just medication. What if this had been me? No medications seemed to help until recently...and I am not even sure about them helping now, as I am still taking them and I feel extremely depressed again. I am sure I would not be here if my pdoc simply prescribed me medication and sent me on my way. My way would not have been merry and I would have given up.
    4. I am so extremely lucky that I am cared for by Dr. X. When I first met him I thought it was the norm in psychiatry to treat patients with both therapy and medication. I recognised fairly quickly that Dr X. and his psychiatric style and approaches to treatment were/are far above the norm. I recognised, and still do recognize, meeting him, and having his unflagging support is the biggest blessing I have ever received in my life.

    Monday, February 16, 2009

    Lessons Learned in Therapy

    What have I learned in therapy? Here are some of the lessons I have learned, or am working on learning, in therapy. Some I have managed to learn by practising and failing, practicing and failing...over and over again, until suddenly the lesson becomes ingrained and followed. Some of them have taken medication to allow me to get to the place where I am able to abide by the lessons. I truly believe that medication has tipped the scales in my favour, but I also know that without therapy I would not have gained what I have gained over the past few years...
    1. There are people who are trustworthy.
    2. There are kind men.
    3. Doing things...activities that feed my love for living is integral for my feeling better.
    4. Guilt is a difficult feeling to dispense of. It is not helpful to me. In fact it harms me. (I am still struggling with this one.)
    5. Lessons learned in therapy must be practised, not just thought about.
    6. Hiding at home is not conducive to improved mental health. It takes the stimulation of others, the stimulation of challenges for me to slowly learn I am both a good and knowledgeable person.
    7. That while a medication may work for some people, it may even have been shown to work for many people, I am an individual and it may not work for me. I require a personalized medication plan. Medication probably requires small changes here and there depending on my cycles.
    8. That having a trustworthy, trusting, knowledgeable, and caring psychiatrist who never gives up on me makes all the difference in the world. I have learned I can lean on Dr. X and he will not give up on me. Knowing I have an advocate and a mentor has allowed me to keep trying and not give up.
    9. Even if it takes 7 years to find the right medication/s, it is possible to find a combo that works to quell my symptoms. Again it may require "tweeking" here and there if symptoms change or become worse. It is not simply a matter of finding the right medication. It is an ongoing challenge.
    10. The more I struggle against my depression and anxiety, the more depressed and anxious I become. This does not mean I need to give up. It means I have to accept my symptoms, yet continue to calmly try to find a way, or ways, to help myself.
    11. That teaching others in a similar situation as me has helped me understand and learn more about myself.
    12. That volunteering gives me a sense of purpose.
    13. That others might actually like me.
    14. That I am not a horrible person...I am an individual, with individual desires and needs. My needs and desires are not weird, they are part of a spectrum of human behaviour.
    15. Even if you think you like being alone, it is important to have friends.
    16. I have an artist inside me.
    17. I should always sing.
    18. Feeling guilty about not being able to work is not helpful, because working to get better, and all the energy that takes is working.
    19. My sexuality is a blessing.
    20. I am a passionate person when I feel better.
    21. "Better" is on a continuum...For me I may not always be on an upward trajectory towards well, but the more I keep working on this difficulty, the more I accept there will be setbacks, the more I recognize that setbacks are a normal state or part of increasing my resiliency, the more I am able to recognize the little steps, the big and small activities I need to do to get back on track if I slip up.
    22. I need to work towards a life I choose, not one that falls into my lap. It is difficult, but rewarding work.
    23. That creativity helps my soul heal, as does helping others.
    24. My blog is work. It is therapeutic for me, and perhaps to others. It has helped me to create and build a supportive community for myself.
    25. That treatment resistant depression is common. That does not mean the depression will never be treatable. It means it may take a lot of support and a longer period of time to find the treatment that works for the person with treatment resistant depression and/or anxiety.
    26. Despite being, knowing, believing I am being spied upon...Do things, Write in my blog. know I am being watched and do it anyways. It is hard to be so open if you think you are being watched, but it is important to know my gaining resiliency, my getting better requires I do all I need to get better, even if I feel afraid.

    Friday, February 13, 2009

    Here is My Truth

    My appointment today was at first a bit stressful, but mostly it was uplifting. I am blessed to be a patient of Dr. X. I have known that from the first day I met him. I connect with him in a way that I cannot seem to with anyone else. I am learning, slowly, that connections like this are important to me and I need to search out other people I feel this way about.

    I once again felt worried I had destroyed my therapeutic alliance with him, by "outing" my crush on him. A big part of why I am afraid it was the wrong thing to do is that it seems that everyone I say I love you to, or anyone I really really like and say so, always disappears in my life. It is so hard for me to get to the stage where I can actually speak my truth about someone. By the time I do it is too late, or the words magically destroy the bond.

    Dr. X told me he was glad I told him, and that it was always important that I speak my truth with him. He also said we have a very strong alliance. I felt he was speaking truthfully, and that it was okay for me to feel whatever I did, and to talk about it openly, safely.

    Part of the reason I feel drawn to him is the way he is: introspective, interesting, interested, thoughtful, never angry, calm, compassionate, always supportive, always available.

    I have never met any man, my entire life who is these things. It's strange, but I was always drawn to the "bad boys". The men who always wanted to use me, or who wanted only one thing (I wanted that to)...but I also wanted more...and could never figure out why I always received less than I needed.

    I watched as all my friends met men, who cared for them, and fell in love with them. By the time I was 27 I had slept with too many men to count, always enjoyed the experiences, but was always left wanting more than sex. I don't know what it is about me, but it seems I am not a lovable person. On top of that I am not sure I have ever loved. I guess that explains not receiving romantic love...you need to feel it to receive it.

    This is my truth:
    • The first man in my life, my dad, was the pattern from which all my relationships with men were cut. It was the relationship I learned to emulate. Unfortunately I have some of my dad in me. I get angry, and irritated, I am a bit overwhelming sometimes. I don't listen enough. I talk too much.
    • My father was controlling, punishing, physically abusive and even worse a dismissive bully who believed the only correct views were his own. He scared me to death. He used intimidation; mental and physical abuse to keep me in line. I am still terrified by him. Almost every time I see him he does something that elicits tears in me. I know I am responsible for the tears, but I cannot make them stop. I cry on the way to his house. I don't want to go, but feel an intense sense of duty to be a good daughter. I humour him when with him to protect myself, but it always backfires. I never mange to stand up for myself.
    • I left home the week after high school and moved to a different province. Less than a week after I moved far away from home I was date raped by the first boy I dated in my new town. I don't know what I was thinking, but I went back to his place after going to a club with him. We started kissing and then he began to take my clothes off. I tried to stop him, but he kept saying it was okay, we didn't have to do anything. When I was laying on the bed with him, partially clad, feeling cared for and enjoying the intimacy, feeling attractive and attracted to this man, he began trying to have sex with me. I said no numerous times, but he pushed me down and forced himself into me. As soon as it was over he told me to leave. I got dressed. Left, and cried all the way home. I felt dirty and used. I showered and cleaned myself up. Then I went to the payphone to beg my Mom to let me come home. She kept telling me I was just homesick and I had to stick it out longer and I'd get over it. I was so ashamed that I had let myself be in the position to have sex, that I had led the person on, that inside I had kind of wanted to make out, that I had not fought harder to get out of there. After that night I let men do whatever they wanted with me. If it got rough, something about that turned me on. It was like my being "taken" triggered a need to be taken. I think I lost my ability to love that night.

    The truth is, the only man, in my real life (vs. people online), that has ever treated me respectfully is Dr. X. Even with other doctors, or professionals I have always felt either condescended to or dismissed. I can see that maybe my first male role model made it impossible for me to trust men, so all men get painted with the same black brushstrokes. Dr. X is consistently respectful. I need that.

    My truth is that I have a lot of pain inside about how my relationships/nonrelationships with men have gone. I don't feel love, because I don't trust anyone. I always expect them to hurt me. I get what I expect.

    I don't mean I get what I expect in a "The Secret" kind of way. I don't believe simply expecting others to be honest, fair, truthful and loving will make it so. That is magical thinking. I know that.

    I mean I get what I expect, because I act and react to the people I would like to love me, in a way that creates a wall between us, in a way that projects fear and self consciousness. In a way that doesn't come across as genuine, or authentic.

    When I am my authentic self I am full of intense passion and a desire to love. I sing loud, and laugh louder. I am overjoyed with being here on earth. I want to experience more, to witness more, to learn more. When I am my authentic self I draw people to me. Unfortunately my authentic self always eventually disappears for days, or weeks, sometimes months, and over the past 10 years into 2 and then 10 years of depression...which leads me to recede, to make myself small, to lose touch with all my talents and skills.

    In therapy I think I have finally realized my truth. My truth is that I will always be besot by depressed periods. This is true. I will always have some sort of cycling appear here and there. This is true. What isn't true is that there is no hope, no way out. I have the power, both within me, and by reaching out to others, like my pdoc, to MANAGE to live with the depression.

    If I have a structure to at least part of my day everyday, if I have other people or my cats and dog that I am responsible to, if I take my medication regularly, if I keep a regular sleep schedule, if I sit in front of my S.A.D. lamp every morning, if I keep in contact with people who care about me, if I continue to see Dr. X. for support...and maybe especially because I like seeing him, if I create art, if I sing everyday...even if I am sad...actually ESPECIALLY is I am sad, I can manage my life. I can make my life, even if it is a sad one, a life worth living.

    It seems ironic, but without my struggles with depression, especially the intense despondency, hopelessness and despair I have felt this last depressive episode, I don't think I would ever have discovered my love for creating art. I may not have rediscovered my intense love for music and singing, I would never have began volunteering. I am not saying depression is a gift...I hate that misplaced platitude. I am saying that without my depression I would never have questioned what I wanted, or who I am. I would have continued on my weary way to a hellish existence. I would never have looked at my life from an existential perspective and asked myself if I loved the life I was living. I did not, but I am beginning to create the life I want. It is remarkable what I am learning about myself. It is remarkable that I am slowly learning it is okay to feel joy.

    Wednesday, October 15, 2008

    How Long Should I Remain in Therapy?

    In my the comments section of my previous post "Consciously Challenge My Thoughts" Kara asks:

    ..."how often and for how long have you met with Dr. X? I ask because I've been seeing my counselor weekly since beginning of January. And it's not that I "want" to stop; actually I'm a bit fearful because it's become a habit...it's in my routine..."

    The short answer is I have been seeing Dr. X once a week for almost exactly 7 years. At least a couple years of that time (off and on) I saw him twice a week. Kara's question, and the subsequent worries attached to it, often swirl around in my head

    I despise myself for feeling like I need the help. I rail against myself for feeling too dependent. I see it as a sign of weakness that every week I look forward to having 50 minutes of time with someone I care about, and someone I feel I can be free around.

    I even think I am a bad person for caring about, thinking about, and actually "wanting" to see my psychiatrists. What kind of person wants to see there psychiatrist? Like in Kara's comment I often think I am habitualized to our meetings, too attached; that wanting to go to a psychiatric appointment each week is somehow a sign I should break the bond.

    Dr. X and I have talked about my feeling this way numerous times. Before my Mom passed away she wanted to meet him, because she too feared I was too dependant on him. When she came to my appointment she asked him about this directly.

    His response was (paraphrased): "In fact I encourage a type of maternal dependence. The type of dependence that allows the patient to feel supported, so they can eventually go out on their own". An example he gave me one time was (and he assured me the example was not meant to be paternal)...the example was that of a parent teaching a child to ride a bike. The child has to feel safe and feel they are completely supported and cared for before the child will feel safe telling the parent to let go of the bike.

    For three of the 4 years before my Mom met Dr. X. she kept telling me how concerned she was about my dependency on him. The day we all met together; as we walked out of his office, she expressed an intense feeling of relief and told me she now felt confident I was both in good hands and in the right hands. She told me it was an immense relief to know I had Dr,. X to help after she passed away, and to know that he would continue to help me.

    My Mom always loved, encouraged, supported and helped direct us. Even when she was depressed she was supportive, kind and loving. Now that Mom has passed away, I really miss her maternal love and support.

    My Dad was a different story. I know he loved us, but he was unpredictable in his anger. He scared the hell out of me when he was mad and I never knew when that was going to be. He controlled me with fear, derision, dismissal and shame. For some reason his model stuck with me and looms large within, and runs through, my life.

    His model of parenting led to my fear of authority figures; so much so that almost every day I worked, despite being constantly rated in my work performance as an employee who exceeds expectations, everyday I was afraid I would be fired, let go, or punished for making mistakes. The things I remember from work are the times I received negative feedback. I find it difficult to remember the feedback that was positive. I really need help relearning life in a safe environment.

    Dr. X.'s support and unconditional regard is so similar to my Mom's when she was alive and well. I used to think I relied on my Mom too much, and she was family. It makes sense that I feel that way with Dr. X.

    More and more I am starting to see that my depression as a chronic, lifelong illness. I will never be "cured". I have to live within the parametres of having a chronic illness, in the way that a person with heart problems, or diabetes, or MS must live within the parametres of their illnesses' symptoms, and with an eye towards reducing the symptoms as much as possible, but also accepting that they have whatever illness they have, and symptoms will come and go.

    The previous paragraph is not meant to sound morose or hopeless. It is a way towards peace with myself. The more I FIGHT my illness, the less the symptoms seem to recede. If I can accept my life is different now than before I had so many Major Depressive Episodes, then maybe I can at least try to excel with my limitations.

    Maybe I won't ever have a job like I had before. Maybe I am relegated to doing sporadic volunteering when I am well enough to do so. That is painful for me to even contemplate, but ironically the way up, might be to let the downs happen, and accept they create limitations.

    A few days ago I began reading Peter Kramer's book, "Against Depression". If I am reading it correctly (and I easily could be misunderstanding as I am having a hard time reading it) in it he surmises that people with depression do not simply need the symptoms of their depression taken care of (the depressive mood, suicidality, amotivation, fatigue, i.e. the psychiatric "markers" of depression). Peter Kramer seems to be saying that ridding a person of the symptoms that psychiatrists have defined as "depressive symptoms" may not be enough.

    The person who is depressed may need to review and rebuild their entire "personality"; how they manage rejection, their ability to socialize, their perfectionism, their ability to accept and go with change, and so on.

    If Kramer is right, and on some level I suspect he is, then therapy for a chronically depressed person would be expected to last a long time, and would probably be required periodically throughout a person's life. Even if a person's MDE symptoms seem to completely disappear, therapy may be needed to help the person successfully get through and manage life's changes and blips.

    So Kara, in the scheme of things, I am saying you have been in therapy a relatively short period of time. It is up to you to determine if you feel comfortable with, and have confidence in, your therapist and the the value of the therapy you do together. I personally believe in quality over quantity.

    I also believe there is evidence that supports long term therapies (both medication and psychotherapy). From what I have read, if your depression is chronic, or you have had more than one or two MDE's in your life, long term support can be really helpful and is probably crucial, given the more depressive episodes one has, the more likely one is to have another MDE inthe future. I believe the statistics show a person who has had three MDE's has a 90% chance of having another in the future. To me that indicates the value of taking a proactive approach towards staving off any indicators of depression and hopefully managing to be in the 10% whose deression does not return

    For me, I am beginning to believe the "habit" of therapy might be a good coping strategy and a good habit to form; like cuddling your puppy throughout the day, or singing to your nieces and nephews, or enjoying a walk in the sun. Just because you habitually like doing does not mean it is wrong.

    Sorry Dr. X...you may be stuck with me for a while;>)

    Friday, October 03, 2008

    "Happy" Anniversary

    It has been seven years today since I first met with my pdoc, Dr. X. Despite all the psychic pain, anger, intense depression and anxiety I have endured over the past seven years I believe October 3, 2001 was the luckiest day of my life.

    Before I wrote in my blog I consistently kept journals, in much the same way that I post here. Unfortunately I did not start a journal until a month or so after meeting Dr. X. I thought it would be interesting to look back to that first meeting.

    My appointment was supposed to be a consultation to provide medication information to my family doctor as my depression had not reacted to two different medications, a CBT learning group, or a 3 month stint in group therapy and numerous attempts at therapy, the latest had been an unsuccessful two years in therapy. Dr. X was a mood disorders specialist.

    I do not remember much about that first appointment. What I do remember is incredible fear as I waited in the waiting room. I had never seen a psychiatrist before (except in a group environment). I was terrified that I was going meet an authoritarian man, whose job it was to judge, diagnose, spit me out and send on my unmerry way afterwards. I thought I would end up one more sad statistic, unable to survive the increasingly despondent feelings I was feeling.

    Instead the man I met was soft spoken, quiet and curious; kind and welcoming. I immediately felt comfortable telling him all kinds of incredibly personal things. He never rushed me; never made any judgements about any of the behaviours I described. Quite the opposite, he encouraged a sense that their was nothing unacceptable about my behaviours except the fact that I was in pain and being hurt by how I felt.

    At the end of the session, rather than send me away and abandon me to the same treatments I had been struggling with for years, he asked if I would like to see him for therapy. Thank you Dr. X. for reaching out when I really needed someone like you to help me.

    At the time I was having intense suicidal ideation. I often take the ferry to Vancouver Island because my whole family lives in various towns/cities over there. Something about the ferry triggers obbsessive suicidal thoughts. While n it I often feel compelled to jump overboard.

    That night the thoughts were flying at me: I would slip quietly off the ferry into the thick black water. It was nightime and no one would notice me in the dark. No one would find me. I'd swim to see if I could make it to shore; searching for a sign that told me I was supposed to be here. Istead I pulled out my journal and wrote about what I would miss if I left this world.

    It was one of my first journal entries after one of my earlier appointments . I believe I would not have even considered these things, or written them rather than jump, without Dr. X's support.

    The things wrote I would miss are simple things that reflect who I am. I thought I would share my short, yet important list with you:
    1. My family
    2. That cool breeze that sweeps across your skin when you are really hot
    3. The smell of the ocean-when the smell is the strongest at low tide
    4. The feeling of the wind against my face when I ride my bike
    5. The feeling of being emerged in water that is not too cool or too warm
    6. Floating in that same water
    7. The flowers in the garden: the giant purple clematic. the lilies, the sunflowers and peonies; all of them

    I find it interesting that the same water I had just been thinking of dying in, became one of the things I would miss the most. (except the water here is pretty damn cold..tiny detail:) I would still miss these things, but would add to the list,
    8. Dr. X.
    9. My friends
    10. My dog
    11. My newfound love for creating art, especially painting

    Dr. X. thanks for being there for me every single time I needed you. It means so much to me. I am a better person for having met you.

    Thursday, October 02, 2008

    Processes in Therapy That Help Me

    The process of therapy is always fascinating and somehow mystical and magical to me. I went in to my session today feeling really low, guilty, withdrawn, angry at myself for allowing the depression to sink into me again, and for doing things that I know in my logical mind affect my mood. I also still felt very tired. Within about half an hour I felt like a huge load had been lifted off my shoulders. I felt completely different at the end of my appointment than I did at the beginning. Sometimes I feel that all I need is to sit in a room with my pdoc and life becomes less difficult. There are however, obective actions/activities/discussions that take place during my therapy that are of this world, practical and very helpful to me.

    As I left I began thinking about what happened in my session that facilitated such an immediate and obvious change for me. I thought of a few things, many of which happen on a regular basis in my appointments, because Dr. X is very consistently non-judgemental about any information he requests, or I provide.

    Here's a list of things that helped me this session:

    1) Dr. X. has the calmest demeanor of anyone I know. This is where the magic comes in. Just being in the room with him calms me and puts me at ease. Even if I have a preconceived notion that I have done something "wrong" and I have been worrying about it; the minute I sit down and we begin to talk my shame, or fear begins to dissipate.

    2) I say "wrong" because it is only me thinking that (or at least vocalizing that:) Dr. X. alerts me to my self-talk, and, without being annoying, quietly helps me see that using pejorative terms when describing things I do makes me feel worse.

    Note: I say "without being annoying", because I would get really irritated if it was a constant barrage of CBT lingo and techniques being tossed at me...I see some merit in Aaron Beck's Cognitive Behavioural Theories, but I find his books and his "CBT is the holy grail of therapy" attitudes really annoying. When a person is severely depressed the theories require energy and a "stick-to-it-iveness that are impossible to garner, let alone maintain.

    3) Dr. X. asks me the questions I'd rather not talk about. This point may sound strange, but I need him to ask me about some things because I feel shame around them, and they are impacting me, and I need help. For example my drinking. He asked me today about my drinking and immediately I feel sheepish and sensitive.

    I feel that way, because I know my slope is getting slipperier. I have gone from 1oz to 2 oz. to 3oz. of vodka/day in a fairly short period. It is not tough for me to see I need to get a hold of it NOW, before 3 become 4 and 5 and so on. I have insight. The problem is, for some reason if it becomes a "don't ask, don't tell" situation I will keep increasing my alcohol intake. I need Dr. X. to ask me. There is something about him asking me that makes me feel a sense of responsibility to rein in my alcohol consumption.

    Again, this is some kind of magical/mystical aspect of therapy. He never, ever says anything that makes me feel bad about my alcohol usage. In fact, he is extraordinarily tactful, thoughtful and caring when asking, even when I have been regularly drinking larger amounts of alcohol. He understands that I do it to "help" myself, but he also, gently helps me see that the effect I am seeking (freedom, release, relaxation etc.), might actually end up being the opposite...fatigue and and its companion insomnia.

    4) At the end of my session he told me he has been reading my blog, and that he liked it. I immediately played down the value of my blog...even though inside I really do like it too. I like writing. I enjoy the connections I have made with other fellow bloggers. I enjoy the challenge of coming up with something I think others might be interested in etc. I felt really happy that he has been reading my blog. However, I never said any of that. I negated the value of my blog.

    We talked about my tendency to put myself down when someone compliments me. The talk was helpful and I sensed he really did enjoy reading what I write. That both made me feel good and made me able to tell you (the readers) that someone I care about enjoys reading what I write(...there!!... that is an exercise in being proud of myself and sharing that pride).

    5) We discussed, and decided together, to make some medication changes to try and address my fatigue. I love that he respects and allows room for decision making based on what he thinks might help, but also based on my wishes and what I think might help too. I feel like we are a team and that he is working with me. Trying to make some medication changes made me feel more hopeful than when I went in. So our joint decisions were to:

    • Cut my alcohol in half...and savour the 1/2 that I drink
    • Cut my Valium down from 15mgs to 10 mgs this week...I'm the one who wants to go off it this fast...I really have a hard time with slow.

    Dr. X also interjected here that if I cannot do manage to lower the dose of Valium, to not be afraid to tell him. He said he would help me and the amount I am taking is small, so he is not concerned about that. Most important he reinforced that I not be afraid to ask for the Valium if I feel I really need it. This really made my plan to lower my dose seem safer. When he said that I felt comforted knowing he wasn't going to just cut me off and not help me.

    • Increase Tegretol from 800 to 1000 mgs (might help me decrease alcohol/Valium and still manage to sleep
    • Increase my Prozac from 40mgs to 60mgs (because I am wondering if the fatigue is a depression symptom, vs. caused by the medicine. (my idea)

    Anyways...I felt much better by the time I was ready to leave my appointment, because I felt very valued, listened to and cared for in my appointment. Unfortunately I feel myself fading right now, so I'm going to have a nap, but maybe I will set my alarm for 3 and try to wake up and paint for an hour or so before dinner.

    Thursday, September 18, 2008

    One of Those Therapy Sessions...

    I just got back from one of those therapy sessions that left me feeling cared for, honoured and understood. I went in exhausted...from all that puppy love, but also from a personal situation that has gone in a tough direction.

    It doesn't matter what the situation is only that I was able to talk really openly about what I was feeling, and how I was trying to manage the hurt. I asked Dr. X to be really open and honest with me about my communication style. I wanted to hear if I'm doing something wrong.

    Often I will ask things like that and I will get positive reinforcement and then I just chalk that positive reinforcement up to his being my pdoc, my therapist, my coach, etc.. I often think he is saying nice things just to help build my self-esteem.

    It did not feel like that today. I asked him if he was just saying what he said and, (like always when I ask that question), he said he would tell me the truth and be honest. Usually I am suspicious about this being the case. I never felt that today. I felt like he was a friend willing to tell me both my positive traits, but also my faults, or where I could improve. It felt good to trust.

    I now believe he will always be honest. Something about the session today made me BELIEVE that, not just hear it. I like that. I want a straight up relationship. I cannot heal if I fear I am being lied to, either explicitly, or by omission. I cannot change my behaviours if I fear I am being placated, rather than honoured with the truth; even if the truth is difficult to hear.

    I need to know myself. Sometimes it takes an other's eyes and ears to help me see that self. I need to understanding clearly, who I am, and how my being the way I am impacts others. I want to improve my communication skills so my social anxiety will lessen. I want to move through this life in in a loving and caring manner, but I also need to learn to say no when I have to in order to care for myself.

    Anyways, today was a great session. I feel blessed to be able to continue seeing Dr. X. I hope in my life I can find a job where I am both gifted at what I do and enjoy what I do. From my experiences with Dr. X. I believe he is blessed with those two things. I know that finding a meaningful job, one that I am good at and where I feel can make a difference to someone else, would bring me to that state of being too. I am praying for that day to come. That will be the day I am well.

    Monday, September 15, 2008

    The Slow Pace of Acceptance and Change

    I am so tired I feel literally sick, but I cannot sleep. 1:30am wide awake, 2:30, 3:30, 4:30 still wide awake. I started taking a low dose of Trazadone on top of everything else, but it hasn't helped me sleep and makes me feel really awful in the morning. Even more tired than before.

    Part of it is the puppy, but I wasn't sleeping even before I knew of or brought the puppy home. Unfortunately, it's not that, "I feel so happy/wired I can't sleep". The kind that happens when my mood shoots up.

    No, this sleep is my old, "I have a millions ruminations going through my head and my mind won't shut up, so I can't sleep" insomnia.

    Today was my first day teaching a "Teen Group" at the Art Clubhouse. It was during the hours I regularly take a nap 4-6/7. I was so tired, until I began and then my enthusiasm and energy kicked in. Thank god. The class was really good and everyone seemed to be enjoying themselves. I also have a really great helper...which makes such a difference...YAY!

    I see so many improvements in my life over the past few months. Actually, I look back, and even before any medication helped me I now recognize that I have been slowly improving over the past few years. The problem is the lability in my mood is such that when I feel good I feel I will always be perfectly well, but when I crash I feel like I am never going to be well.

    I am trying really hard to accept I have a mental illness; to say to myself, "My fatigue is a symptom (of the medicine or the illness...who knows), my memory problems, concentration and word finding problems. my sleeplessness and sleepiness...they are all symptoms. Are these better than wanting to die all the time? Yes.

    So life is improving, but I am trying to allow myself to accept that life has changed dramatically for me, and needs to change even more for me to become "well" (whatever that means). I am a different person because of the experiences with depression and anxiety I have gone through over the years. My functioning is different than it was. That is hard to accept.

    I truly believe my old life is gone. I think my last wolf dream told me that, but my new life is just beginning and hopefully despite the side effects/residual symptoms it will be a life worth living.

    I may fall into a depression again, but I think I have some skills now that I didn't have before, and I have a pdoc I trust and know is right for me. I know he will help me even if I get fully well and become sick later on. I also am working hard at integrating myself into a community that matters to me.

    So I'm sickly tired, but I am much better off than I was. My being able to say that proves the point. I think my Mom sent me my new puppy as a symbol of the beginning of my new life. The black wolf killed the old me, and the white dog will protect and help the new me grow.

    I say my Mom instigated the change, because my puppy came from a breeder named "Casamoonen". Casa means house...I see the name as "house of the moon". My sisters and I all decided when my mom died she became the moon. (which is full tonight by the way). Every night I step outside and see the moon and say hello to my Mom. My new puppy was sent to me by her. I believe that. He is a messenger sent to help me with my transition into my new life.

    It is strange how I get sent all these messages in dreams, in life, in everything around me. Does this happen to others? Do you get sent messages that you feel compelled to heed or follow? It happens too often for me to ignore.

    Thursday, July 31, 2008

    Death Anxiety


    Aqua, "Destination Unknown" (linocut 1/5) 2007

    Me: (Among a list of other things) "I have been sleeping a lot. I'm not sure if it's because I am tired or I just can't face doing things. I feel like I just don't want to do anything, or I have too much to get done and it's overwhelming. I can't face all the things I have to do, so all I want to do is sleep."

    Dr. X: "Tell me your list of things you want to accomplish."

    Me: (Completely misinterpreting "why" he is asking this question, because all I am worried about is losing him) "Why? Is this so if I need to be seen by someone else they will have a list of all the things I need to work on? So, they will know what I need to address in therapy?"

    Dr. X: (Looking really perplexed, but trying hard to hide that) "No, you just said you were sleeping a lot to avoid things, or because you were avoiding getting things done. I was wondering what those things were."

    Me: "Oh! Getting a job!"

    Dr. X.: "You have a job. (referring to my volunteer work)"

    Me: "I mean a job where I get paid; where I stop being a drain on the social services system; where I can take care of myself; where I don't rely on anyone else. All I ever heard from my Dad when I was growing up was how awful "those" people were (Hippies, the unemployed, anyone who wasn't working and paying there own way, anyone who needed help from anyone else). I have internalized my Dad. On top of that all I'm hearing from him and my one sister right now is do more and you will feel better, or (from my Dad) Why don't you get a job? A "real" job. Get it together."

    Dr. X. "You are working at a real job. The system sets it up so you cannot win one way or the other. Maybe the Art Clubhouse should pay you a higher wage, so it would be seen more as work and more valuable by you and by others, where it could help support you. The big thing here though is your internalization of your Dad's criticism."

    Me: (Feeling cared for and supported by Dr. X, but dejected; like I will never be a valuable human being). "I know. I am doing things that are important to me. If I worked for $10/hr doing something I felt was meaningless or purposeless I know I'd be even more depressed. I just never thought I would end up like this. I always thought I would move up the ladder in life (always moving forward, getting better jobs, getting ahead). I never expected to be on disability, to not be working, or to be unwell. I always thought I would do something with my life."

    Dr. X: Silent (His specialty: a safe, reflective silence...like he is when he waits for me to figure out for myself that I am not thinking clearly)

    Me: "I guess it is like the print I made for you last year..."Destination Unknown". (Thinking to myself how making that print for Dr. X may have been eerily full of the bizarre sense of magical foresight I seem to have sometimes. I made it to represent my struggle and how it is taking me in directions I never expected; and often didn't want, to go, but he clearly sits on that same bus with me now...that I never expected).

    I was driven to make that print for him. I felt I had to give it to him. I messed it up so many times and did it over and over until it came out right. An intense dream created the metaphor of a bus taking me in an unexpected direction; I added the Raven; a trickster figure. He is devising, overseeing and fully intending whatever outcome occurs.

    None of us knows which way our lives are headed. None of us can foresee the outcome. We are all on that bus whose destination is unknown. That scares the hell out of me.

    Wednesday, July 30, 2008

    Fear of Loss

    I have written about this two or three times over the past few weeks, but each time I have removed the posts or portions of the posts that refer to my pdoc disclosing he is unwell. Each time I wrote about it, afterwards I felt I was being unfaithful, traitorous, untrustworthy, or unsupportive of him. I felt afraid that my apprehension and fear about him being unwell was both unhelpful to him, and proof that I am selfish in my fear.

    I need to write about it though because I am terrified and extremely worried for both of us and it is really affecting me.

    I am very concerned for Dr. X. He told me he has Multiple Sclerosis (MS). He needed to disclose this too me, because MS can be unpredictable and there may be (and lately have been) times when he needs to be away from work. I need to know why. I need to know it is not me when he calls and says he cannot meet for our appointments.

    When faced with this kind of information my first reaction is to inform myself about what the information means. MS is a disease that attacks the central nervous system. It breaks down the myelin that acts as a protective coating for the central nervous system. It causes lesions in the white matter of the brain (an effect of the breakdown in patches of myelin). From what I have read MS can be a very difficult illness to manage.

    Some people may have very few symptoms for long periods of time and then become ill for periods of time. Some people have minimal symptoms and some have very difficult symptoms to manage. It seems the disease's symptoms are very individuated to each person.

    Symptoms can include (but may not include, or may minimally include): Vision, balance and short term memory problems, bladder an bowel problems, incoordination and muscle stiffness and sometimes paralysis and severe fatigue.

    From what I understand there are four subtypes of MS:

    Relapsing & Remitting MS; a type of MS where the person has times of relapse into the illness and then the symptoms remit for periods of time,
    Benign MS: (unsure), but I think this is where the person with MS has minimal symptoms and years after they have been diagnosed they are still functioning very well
    Progressive MS, which includes two sub-types:
    Primary - Progressive MS- People with this form of MS have symptoms that continually worsen, with no relapses.
    Secondary Progressive MS - This version starts out as a relapse and remitting pattern and eventually becomes unremitting with a continual gradual worsening of the conditions symptoms

    That is the "education" aspect of my fear, then comes the sense of intense and deep sadness for my pdoc. He is so young (younger than me). Has a family, is so active and seemed so healthy. He is generally a "blank page" to me. He rarely talks about himself or anything personal. However, from meeting with him and talking with him I know a bit of what he is like.

    He is extremely intellectual, well read, and I see an intense desire for him to learn and understand everything he comes across. I worry that MS will affect his ability to enjoy intellectual undertakings, like reading and remembering, in the way my depression and maybe also, the medications I take, have pretty much destroyed my ability to read, remember, follow any book that is more difficult than a newspaper.

    Short term memory problems can really be a huge barrier to being able to follow plot lines, or in the case of academic articles, scientific information. Not being able to read has caused an intense sense of loss in me. I hope Dr. X's MS does not affect him in this way. I also know he plays the piano, and is very physically active. I pray he is able to continue these pursuits. I am really worried for him.

    Now comes the really selfish part. I am really worried for me too. A huge part of me wishes I could magically become better so I did not need his support. I want so badly to be better for him, so he had one less thing to worry about. I understand how a chronic illness can impact your life. I recognize that at some point he may have to use what energy and good days he has to take care of himself and his family. Even though I completely understand how his need to make himself and his health and well being need to be the most important thing in his life, I am terrified he will leave work. I am so scared I will never see him again. I feel afraid losing him will be a loss in the way losing my Mom was a loss.

    I have never met anyone like him. I know that without him I would never have survived these past 6.5 years. I recognize I am stronger now, but I am certain there is no person on earth I could connect with, open up too, and be as honest and open as I am with him.

    He gets me, like I know no other pdoc ever would or could. He understands my lifelong search for meaning and purpose. He always gives me the sense that I am a normal human being, with intense, yet not strange or unordinary struggles, without my feeling dismissed or misunderstood. He understands how important my dreams and their symbolism are to me and my life, how much value I place on my struggle to create, expand and relay my search for meaning to others and how important my working towards a purposeful life is to my well being. He gets me.

    I am so afraid I will have to start from scratch with someone else; that I simply will not connect to a new person, that I will need to spend this long learning to trust someone else, Most of all I am so scared I will lose my connection to someone who is as important to me as someone in my family. Even if he needs to leave work to take care of himself. I am terrified of the sense of loss I would feel if I could never see him again.

    Thursday, May 29, 2008

    My Soul Wants to Trust

    Me: You must have noticed I have trouble trusting?

    Dr. X.: No, I haven't really noticed that.

    Me: You have to be kidding. I waffle back and forth between totally and completely trusting you and then thinking you are being disingenuous. It is not you though. You have shown you are completely trustworthy. It is me. I don't trust people.

    Dr. X. : I have not seen that.

    These are moments that make me go huh?

    How can I think this, feel this, KNOW I am like this and no one sees that in me. I told him he would see what I meant if he read my blog, because while I believe he is an incredible doctor and I believe he is knowledgeable and I believe we have the best therapeutic alliance I could ever hope for, I often still feel scared. I sometimes feel suspicious or paranoid or afraid of him and our work together.

    Dr. X., "You mean like you are afraid it is too good to be true?" [Our therapeutic alliance, his caring about me, his compassion and trustworthiness etc.]

    Exactly! Exactly!

    Everything I believe in, everyone I trust hurts me or dies, or disappears. I am afraid that if I believe and trust in him I will be hurt the same way the other important men in my life hurt me. It is like I think he is my Dad; someone I always try to seek approval from, try to make care about me and every time I let my guard down and think I can trust him, I can let him in....every time he dismisses me, or does, or says something that hurts me or that reminds me I am nothing. Every time I try I get sent back to square one. The unpredictability destroys my trust (though you would think by now I would just stop trying...but to me that is not an option)

    Maybe it is not that I don't trust, but that I trust too much. A friend at the Art clubhouse and I were talking and he said it was funny how you would think so much depression and mental illness would make me jaded, but I'm not.

    Me (To Dr. X.): I know you think I am jaded, because you see me when I am so sad all the time, but really I am not jaded. When I feel well I feel like the world is this perfectly beautiful place. I don't know if it is just me, but I am astounded by all the details in life and in everything on this earth. It almost feels like I have achieved some godly state of being when I feel well...I am ensconced in this world that simply is total beauty and it feels breathtaking to stand amongst such sublime surroundings.

    Dr. X.: I do not think you are jaded. I think sometimes when you are really depressed you sometimes struggle against being jaded.

    I was glad he said that, because I think, in spite of the hell I go through, when I am on the other side I want so hard to believe. To believe in love, to believe in caring and kindness, to believe I am likable, to believe I will be loved, I am loved and cared for. I want so hard to believe that I do make a difference to some people; that it matters what I do, that one day my purpose will become apparent, or even better I will choose my purpose. I want my life to matter.

    Monday, April 21, 2008

    How Mood Stabilizers Feel and I want to Die

    I thought I'd write a post to those of you who get to my blog by googling the above two topics. They seem to be common and maybe I can help you. Remember the following is based on my experiences only. I am a patient, not a Dr. and everyone experience these things differently. Please call your psychiatrist, or doctor if you are in distress. If you cannot get a hold of them and are feeling suicidal please call your crisis line and/or take yourself to the hospital. No one should have to cope with these things alone.

    1) I Want to Die: (Please read this first)

    I have felt this way this way too many times to count. You can find many posts on this blogsite where I have said this very thing. What has kept me here through 6.5 years of hellish severe treatment resistant major depression and twenty years of having major depressive episodes?

    I'd say four things: My family, my psychiatrist, medication and some kind of resiliency inside me that clings to life even in my darkest moments.

    Every time I think of suicide I am left with the thought about how, while it will be a release for me, it will forever impact those who love me. I have tried so many times to think of how I could die without impacting others, but after losing my Mom two years ago I know that is not possible.
    Even if I did not have my family, I have a psychiatrist who does therapy with me once and for a long while twice, a week. He is intensely supportive, consistent, caring and available. I can speak to him about anything and every thing and trust he will help me. I tell him about my obsessive suicidal thoughts when I have them. Sometimes this is enough to relieve me of them if only for a while. I find sharing the thoughts and knowing he gets it to be helpful for me.

    Some medications have helped me too...Epival, Valium (to reduce my anxiety, which sometimes leads to anxious, violent and agitated suicidal ideation).

    Finally there is something inside me that never gives up, even in my darkest moments. Sometimes I just need to cling to the couch, or my pillow until I get through the thoughts and come out the other side alive.

    My psychiatrist made a suggestion that has really helped. He told me to write a letter to my sad self on a day when I was feeling really good. So I bought a beautiful card and one day when I was feeling really well I wrote a point form note to my sad self about all the things that are good about me and my life. In the envelope I enclosed pictures of my family members and $50.

    When I felt like suicide I open and read the note and look at the pictures. The $50 was an incentive to get myself out of the house and go buy something that made me feel good (a massage, or a new top, or a plant for the garden etc.) This really helps me.

    I am not saying suicide is not your choice, because I believe ultimately we should all be free to make that choice. I am saying, it may be your choice right now, but you may not make that choice a few hours, days or weeks from now. If you commit suicide you will not be able to change your mind.

    Please, if you are thinking of suicide, or planning to commit suicide, seek help. Call your doctor, call a friend, call the crisis line or go to emergency at the hospital.

    2) How does a mood stabilizer feel?

    I believe Aristotle was the first to say "Knowledge is power" (although Sir Francis Bacon also said it, but much later)...sometimes though, it is difficult to discern the difference between "knowledge" and "information".

    They are two completely different things. There is tons of "information" about mood stabilizers out there. You could read forever about all the scary side effects...but remember:

    You may NEVER experience those side effects!!

    The drug companies are supposed to list all the major side effects that people have experienced (information), but until you try a particular medication you will have no idea whether you will have even a single side effect (knowledge). The information about possible side effects for the mood stabilizer I take, (Tegretol/Carbamazepine), would be enough to frighten even the most brave (or desperate) patient...I have had ZERO side effects from it.

    Remember different people have different reactions to these medications. I have no idea why, but things I can't manage at even minute doses I have friends who are on HUGE doses who are feeling much, much better. Here is my experiences:

    Lithium: I was so scared to try Lithium. I thought it would mean I was really insane (I am...ha, ha), or much sicker than I thought I was. I felt stigmatized by even the suggestion that I try it. I avoided trying it for 4 years. Then I tried it out of desperation.

    At 1200mgs...Surprise, surprise...I felt almost instantaneously better and I had hardly any side effects, and no significant side effects. I had to pee more. That was the side effect. Unfortunately, it did not seem to work after I became sick with a really bad 4-week long cold/flu. I seem to remember my lithium levels going too high two weeks into being sick, causing extreme fatigue, which may have contributed to my being sick for so long. I lowered to 900mgs didn't help and then up to 1050mgs and I felt fatigued again and it didn't help my mood. I really wanted Lithium to work, because I felt comfortable with having so few side effects. Lowered to

    Divalproex Sodium (brand names: Epival, Depakote): (tried 900-1200mgs) Epival quickly slowed down and lowered my intense feelings of rage and helped lower my anxiety. My mood still cycled, but the intense BAD energy dissipated and my thoughts of suicide slowed down. Unfortunately it came with side effects I could not manage. In the beginning my hair began falling out in clumps (I took 200micrograms Selenium a day with Zinc and this slowed down and eventually stopped). The big problem I had was trouble with my memory and attention. I would walk into a room and forget why I went there. I did memory tests with my pdoc and it was clear I was having difficulties. Still I remained on it until I got through and intensely bad period in my depression. It really helped the agitated energy inside me and was worth the side effects.


    Lamotrigine 200mg: Tried twice. Once after 8 sessions ECT(2004). The ECT time my mood seemed to lift for a while. I seemed to become almost hypomanic like when I took it after ECT (could have been the ECT?). I had balance problems both times, but two weeks after ECT I was extremely high and running all over the place on the ice at a curling event. I fell a broke both elbows. Three weeks later I fell fell again off a curb into traffic, then fell a couple more times. Dr. X suspected it was causing balance problems, Tried 200mg again Jan/Feb 2007 with Lithium...nothing.

    Gabapentin...might as well have taken sugar pills.

    Carbamazepine (Tegretol): Since August/07 I have been taking this at doses of 600-900mgs/day in the p.m. I have ABSOLUTELY no side effects. I believe it slowly is helping my moods cycle less often, though I still cycle and I have been severely depressed on it until the past few weeks I really think it has slowed the lability of my moods...I cry less even when depressed, I can function a bit better even when depressed. I am taking it now with Prozac, Valium and Dexedrine, and I think it is helping me sleep better than before (Although I still go through long periods of insomnia like right now).

    I haven't discussed my experience with antipsychotics as mood stabilizers. I know many people who take high doses of these and swear they help them. I could barely function on even low doses. I guess this supports the idea that we are all so unique in what does and does not help us and how we react to different medications.

    I guess what I would like to get across in this post is that there is so much misinformation about mood stabilizers out there. If you read an article saying they will impact you negatively, you can easily find another that states the opposite. I have learned to both trust my psychiatrist to guide me through my medication trials, but never blindly. I still research what he suggests and we make the decision together about what I will try.

    Being an active participant in my therapy, asking questions, working together with my doctor, and having a therapeutic relationship with my psychiatrist where I both trust my doctor's knowledge and his support is the way I make decisions about what medications I will take to try to help myself. I hope everyone has the opportunity for this type of an experience.